For those who have been keeping in touch and sending me their prayers and good wishes, I thiank you all. You would think, at least I did that by now there would be some news to be happy about instead of my constant pissing and moaning-LOL, but not the case.

  They still cannot get my meds in the pump correct and now tell me it could take 3 months just to get me to a  level of the beginning to ease the pain! Why is there no educational seminar/booklet/talk about this beforehand?  I had no idea about most of the problems I am going thru, which is very upsetting when you don't know what's happening to your body.. For anybody squirmish, maybe  you should skip this part! It seems for the first 3 months you gather fluid around the pump, a natural occurance , youtr organs produce extra fluids, things leak etc., so your stomach after a certain period of time gets large and has to be drained--I was never told that, so when I loooked like I swallowed a soccer ball I was freakin. Surgeon explains and ends up taking uot with a horse syringe 80cc's of fluid, 8 huge tubes of fluid, when he was done I was almost 1/2 the size I was before that. Instantly felt better because it was pressing the pump so strong against my skin.

 OK, so now they are coming to my house 2 times a week to up the meds for the pump, . On Fri when they cxame nurse freaked out because my stomach was huge again, my feet and ankles looked like elephant legs, the scar on my back was all swollen, so she wants me to see surgeon asap. I call surgeon, and they said, man are you lucky he just had a cancellation, can you be here in 45 min.?  for me tht is basically impossible, but said yes and made it.Appt. was 4 11. 11:30, no doc, 12, no doc, 12:10 went out to hall and asked what's going on?On his way, was stuck in surg., mean while I have a friend with a 3 yr.old & 18 mth. old out in van, 12:30- back in hall, here he comes, he looks at me and in front of all the nurses, some doc's and patients, yells, Mrs. Daley, do u think u can come here whenever u want and I am supposed to drop everything and take care of u? As my jaw dropped, his nurse jumped up and says, I called her, you had a cancellation after surg., and the pump people called and said this was emer. and had to be dealt with asap, he looks at her and yellls, since when do you change my schedlue without consulting me-duh, isn't that what they are for- to make the doc's sched.? So he then tells me he will not see me unless I want to wait till 4pm and he is done with all patients, he might do it. I was beyond pissed, You actually don't have 3 min. for me after I have been here since 11 and it is now 12:40? NO

! and he walk away. I go back in room, pu t on coat and his nurse comes in, thought she was gonna cry, says can u wait 5 min.,  I am gonna get his nurse preact., I said u have 2 min, because I amnot leaving this woman another minute with these poor kids, so I just wrote a note getting ready to go and she walks in, goes over chart, checks me out, gets all upsert at what she see's and says I will be right back am just going to double check with him, so 3 min. coat back on, just ready to open door to recept. area when she calls me, ofcourse a nosey female doc has to stop and listen, she says to me I am so sorry he said AI can't do it, if you want to be drained u have to wait for him!!!! I asked her if she had ever done it and was capable of doinf it,yes, then nosey doc wants to know what's going on, I wanted to say none of your f---in business, but just said go ask dr.B., I oopened the door so everone could hear and said it is now 12:50, I have been here since 10:50 for a 3 min. procedure, which you called and said there was a cancellation, so there would be no problem and the man not only yells at me in front of dozens of people, refuses to treat me knowing this was an emer., well cancell any future appts., I never want to see his face again and Mon. a.m. I am calling Medicare to make sure he does not try to collect for this visit and then am calling my lawyer.  This was totally unacceptable, unprofessional  and I am not the type to take this treatment and keep my mouth shut.  So how's that  for professional treatment?

 Now tomorrow my pain doc better not have 1 excuse as to inot drain me, I know he hates to do it but too bad, this is part of your job and I swear I won't leave his office till he does something!  I cannot believe I am still writing and bitching about the same things six weeks later. Does anyone else find this incredicbly unbelieveable?  Is this the way disabled people on Medicare get treated-is it something I am supposed to get used to? If there is anyone else on here that is disabled on Medicare, please let me know if you have experienced this before.  

 Hopefully my next blog will have better news and not the samedowner crap u are probably tired of reading, I just find it so unbelieveable AI have to write about it!

Anna